
At this time I am less concerned about or focussed on surviving than I am on how bad the side effects of the chemo will be. My prognosis is good if I make it through the chemo--a protocol that includes Taxol via IV and cis-platinum delivered intraperitoneal (IP) which means that they inject it into my abdominal cavity through a port that my onc-gyn installed during my surgery last week. The protocol consists of six 21 day cycles of chemo delivery. I get the chemo over the course of 3 full days (i.e 8 hours each day of infusion) on Days 1, 2 and 8 and I need to be hydrated for 4 hours/ day on Days 3, 4 and 5 in each 21 day cycle. That's a lot of time being hooked up to an IV or IP. I am not sure how I will spend the rest of the time because I do not know how debilitating the side effects will be. I am assured of having fatigue, hair loss and anorexia. I probably will have some abdominal bloating and digestive problems as well as nausea for which I will be given medication to ease the severity.
I am trying to prepare for the hair loss which is probably the only side effect for which I can plan. I am cutting my hair very short rather than shaving it because I need to ease into its loss. Even though I wear my hair relatively short, I am very fond of it. I have also been lucky to have thick eyebrows and eyelashes all my life so I am dreading their loss. I expect my hair will grow back in gray rather than the blonde streaks I have sported for so many years. It will be another "scarlet letter" for me, announcing to the world that I have cancer. My son has, however, come up with an idea for a slogan for me to go on a hat or t-shirt (preferably in teal, the apparent marketing color for ovarian cancer). "It's not fair. Not my hair!" I love this slogan!
I am working up the strength for this ordeal but reserve the right to be crabby and negative. I hope you all understand and accept that I am the one making this journey and will do whatever I need to do to get through it. Please bear with me.
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